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Please use this identifier to cite or link to this item: http://hdl.handle.net/1942/18099

Title: Adherence in multiple sclerosis (ADAMS): Classification, relevance, and research needs. A meeting report
Authors: Heesen, Christoph
Bruce, Jared
FEYS, Peter
Sastre-Garriga, Jaume
Solari, Alessandra
Eliasson, Lina
Matthews, Vicki
Hausmann, Bettina
Ross, Amy Perrin
Asano, Miho
Imonen-Charalambous, Kaisa
Köpke, Sascha
Clyne, Wendy
Bissell, Paul
Issue Date: 2014
Citation: MULTIPLE SCLEROSIS JOURNAL, 20 (13), p. 1795-1798
Abstract: Background: Adherence to medical interventions is a global problem. With an increasing amount of partially effective but expensive drug treatments adherence is increasingly relevant in multiple sclerosis (MS). Perceived lack of efficacy and side effects as well as neuropsychiatric factors such as forgetfulness, fatigue and depression are major determinants. However, research on adherence to behavioural interventions as part of rehabilitative interventions has only rarely been studied. Methods: In a one-day meeting health researchers as well as patient representatives and other stakeholders discussed adherence issues in MS and developed a general draft research agenda within a focus group session. Results: The focus group addressed four major areas: (1) focussing patients and their informal team; (2) studying health care professionals; (3) comparing practice across cultures; and (4) studying new adherence interventions. Conclusions: A focus on patient preferences as well as a non-judgemental discussion on adherence issues with patients should be at the core of adherence work.
Notes: [Heesen, Christoph] Univ Med Ctr, D-20246 Hamburg, Germany. [Bruce, Jared] Univ Missouri, Kansas City, MO 64110 USA. [Feys, Peter] Hasselt Univ, Diepenbeek, Belgium. [Sastre-Garriga, Jaume] Univ Autonoma Barcelona, Serv Neurol Neuroimmunol, Multiple Sclerosis Ctr Catalonia Cemcat, Hosp Univ Vall dHebron, E-08193 Barcelona, Spain. [Solari, Alessandra] Ist Neurol C Besta, Milan, Italy. [Eliasson, Lina] Alantis Healthcare, Cranford, NJ USA. [Matthews, Vicki] MS Trust, Letchworth, England. [Hausmann, Bettina] European MS Platform, Brussels, Belgium. [Ross, Amy Perrin] Int Org MS Nurses, Elkridge, MD USA. [Asano, Miho] Queens Univ, Kingston, ON K7L 3N6, Canada. [Imonen-Charalambous, Kaisa] European Patients Forum, Brussels, Belgium. [Koepke, Sascha] Univ Med Ctr, Lubeck, Germany. [Clyne, Wendy] Coventry Univ, Coventry, W Midlands, England. [Bissell, Paul] Sect Publ Hlth, Sheffield, S Yorkshire, England.
URI: http://hdl.handle.net/1942/18099
DOI: 10.1177/1352458514531348
ISI #: 000345214200023
ISSN: 1352-4585
Category: A1
Type: Journal Contribution
Validation: ecoom, 2015
Appears in Collections: Research publications

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